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- Article] Minimum skills required by children to complete health-related quality of life instruments for asthma: comparison of measurement properties
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DocNo of ILP: 7378
Doc. Type: Article
Title: Minimum skills required by children to complete health-related quality of life instruments for asthma: comparison of measurement properties
Authors: Juniper, EF; Guyatt, GH; Feeny, DH; Griffith, LE; Ferrie, PJ
Full Name of Authors: Juniper, EF; Guyatt, GH; Feeny, DH; Griffith, LE; Ferrie, PJ
Keywords by Author: asthma; paediatrics; quality of life
Keywords Plus: OF-LIFE; UTILITIES; PARENTS
Abstract: To gain a complete picture of a child's health-status, measurement of health-related quality of life (HRQL) is necessary. Since parents do not accurately perceive children's HRQL, information must be obtained from the children themselves. The aim of this study was to determine the minimum age and reading skills required by children to complete competently the Paediatric Asthma Quality of Life Questionnaire (PAQLQ), the Health Utilities Index (HUI), the Feeling Thermometer and the Standard Gamble, and to evaluate the validity of each for measuring HRQL in children with asthma. Fifty two children (age 7-17 yrs) with symptomatic asthma participated in a 9 week single cohort study with HRQL and clinical asthma control assessed every 4 weeks. All children provided very reliable data for the PAQLQ and the HUI but they needed greater than or equal to grade 6 reading skills to complete the Standard Gamble and greater than or equal to grade 2 skills for the Feeling Thermometer. In those children who were able to provide reliable data, the PAQLQ had the best discriminative and evaluative measurement properties, followed closely by the Feeling Thermometer. Measurement properties in the Standard Gamble were weaker and although the HUI was very reliable it was not actually measuring asthma-specific HRQL. The Paediatric Asthma Quality of Life Questionnaire may be used with confidence in clinical studies and practice to provide a profile of children's day-to-day experiences. In those children with adequate skills to complete the test reliably, the Feeling Thermometer provides a good estimate of the value that children place on their asthma health status.
Cate of OECD: Clinical medicine
Year of Publication: 1997
Business Area: other
Detail Business: medicine & science
Country: Denmark
Study Area: culture, quality of life, Quality, comparison, comparison, electronic & technology, technology, children
Name of Journal: EUROPEAN RESPIRATORY JOURNAL
Language: English
Country of Authors: MCMASTER UNIV,DEPT MED,HAMILTON,ON L8N 3Z5,CANADA; MCMASTER UNIV,CTR HLTH ECON & POLICY ANAL,HAMILTON,ON L8N 3Z5,CANADA
Press Adress: Juniper, EF (reprint author), MCMASTER UNIV,FAC HLTH SCI,DEPT CLIN EPIDEMIOL & BIOSTAT,1200 MAIN ST W,HAMILTON,ON L8N 3Z5,CANADA.
Email Address:
Citaion:
Funding:
Lists of Citation: BRIGANCE AH, 1993, BRIGANCE COMPREHENSI; FEENY D, 1995, PHARMACOECONOMICS, V7, P490, DOI 10.2165/00019053-199507060-00004; FRENCH DJ, 1994, QUAL LIFE RES, V3, P215, DOI 10.1007/BF00435387; GUYATT G, 1987, J CHRON DIS, V40, P171, DOI 10.1016/0021-9681(87)90069-5; Guyatt GH, 1997, PEDIATRICS, V99, P165, DOI 10.1542/peds.99.2.165; GUYATT GH, 1992, J CLIN EPIDEMIOL, V45, P1341, DOI 10.1016/0895-4356(92)90194-R; JUNIPER EF, 1994, J CLIN EPIDEMIOL, V47, P81, DOI 10.1016/0895-4356(94)90036-1; Juniper EF, 1996, QUAL LIFE RES, V5, P35, DOI 10.1007/BF00435967; JUNIPER EF, 1993, AM REV RESPIR DIS, V147, P832; Juniper EF, 1996, QUAL LIFE RES, V5, P27, DOI 10.1007/BF00435966; RUTTENVANMOLKEN MPMH, 1995, EUR RESPIR J, V8, P888; STEIN REK, 1980, MED CARE, V18, P465, DOI 10.1097/00005650-198004000-00010; TORRANCE GW, 1986, J HEALTH ECON, V5, P1, DOI 10.1016/0167-6296(86)90020-2; TORRANCE GW, 1995, PHARMACOECONOMICS, V7, P503, DOI 10.2165/00019053-199507060-00005; TOWNSEND M, 1991, ANN ALLERGY, V67, P403
Number of Citaion: 15
Publication: MUNKSGAARD INT PUBL LTD
City of Publication: COPENHAGEN
Address of Publication: 35 NORRE SOGADE, PO BOX 2148, DK-1016 COPENHAGEN, DENMARK
ISSN: 0903-1936
29-Character Source Abbreviation: EUR RESPIR J
ISO Source Abbreviation: Eur. Resp. J.
Volume: 10
Version: 10
Start of File: 2285
End of File: 2294
DOI: 10.1183/09031936.97.10102285
Number of Pages: 10
Web of Science Category: Respiratory System
Subject Category: Respiratory System
Document Delivery Number: YC459
Unique Article Identifier: WOS:A1997YC45900018
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