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- Article] Parental perspectives of the health status and health-related quality of life of teen-aged children who were extremely low birth weight and term controls
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DocNo of ILP: 6818
Doc. Type: Article
Title: Parental perspectives of the health status and health-related quality of life of teen-aged children who were extremely low birth weight and term controls
Authors: Saigal, S; Rosenbaum, PL; Feeny, D; Burrows, E; Furlong, W; Stoskopf, BL; Hoult, L
Full Name of Authors: Saigal, S; Rosenbaum, PL; Feeny, D; Burrows, E; Furlong, W; Stoskopf, BL; Hoult, L
Keywords by Author: health status; quality of life; adolescence; extremely low birth weight; parental
Keywords Plus: OF-LIFE; SCHOOL-AGE; INFANTS; PREFERENCES; OUTCOMES; SYSTEM
Abstract: Objectives. To compare the health status and health-related quality of life of teen-aged children who were extremely low birth weight (ELBW) with matched controls from the perspective of their parents. Study Design. Geographically defined cohort; longitudinal follow-up; cross-sectional interviews. Participants: parents of 149/169 (88%) ELBW children between 12 and 16 years of age (including 41 children with neurosensory impairments) and 126/145 (87%) parents of term controls. Health status of the teenagers was classified according to the 6 attributes of the Health Utilities Index Mark 2, based on information obtained during parent interviews. Parents were asked to imagine themselves living in their own child's health state and 4 preselected hypothetical health states when providing directly measured standard gamble utility scores. Results. Parents of ELBW children reported a higher frequency and more complex functional limitations than parents of controls for their own children's health status. Also, the mean utilities were lower (ELBW = .91 vs controls = .97) and the variability in their scores was greater. There were no differences in the valuation of the hypothetical health states provided by parents of ELBW and control children. Conclusions. ELBW children were reported to have a greater burden of disability than were control children based on parental descriptions. Nonetheless, parents of ELBW children, on average, rated the health-related quality of life of their children fairly high. Thus, differences in reported functional status are not necessarily associated with lower utility scores.
Cate of OECD: Clinical medicine
Year of Publication: 2000
Business Area: gamble
Detail Business: gamble
Country: USA
Study Area:
Name of Journal: PEDIATRICS
Language: English
Country of Authors: McMaster Univ, Dept Pediat, Hamilton, ON L8S 4J9, Canada; McMaster Univ, Dept Clin Epidemiol & Biostat, Hamilton, ON L8S 4J9, Canada; McMaster Univ, Ctr Hlth Econ & Policy Anal, Hamilton, ON L8S 4J9, Canada; Hamilton Hlth Sci Corp, Childrens Hosp, Hamilton, ON, Canada
Press Adress: Saigal, S (reprint author), McMaster Univ, Dept Pediat, Room 4G40,1200 Main St W, Hamilton, ON L8S 4J9, Canada.
Email Address:
Citaion:
Funding:
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Number of Citaion: 36
Publication: AMER ACAD PEDIATRICS
City of Publication: ELK GROVE VILLAGE
Address of Publication: 141 NORTH-WEST POINT BLVD,, ELK GROVE VILLAGE, IL 60007-1098 USA
ISSN: 0031-4005
29-Character Source Abbreviation: PEDIATRICS
ISO Source Abbreviation: Pediatrics
Volume: 105
Version: 3
Start of File: 569
End of File: 574
DOI: 10.1542/peds.105.3.569
Number of Pages: 6
Web of Science Category: Pediatrics
Subject Category: Pediatrics
Document Delivery Number: 290MZ
Unique Article Identifier: WOS:000085681100030
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